Benjy’s condition was diagnosed as Tay-Sachs, a usually fatal genetic disorder for which there is so far no cure and for which his parents said they thought they had been tested and presumably cleared.
What followed was a grueling campaign that lasted for several months to persuade Aetna, the Hartford company that provided the couple’s medical insurance, to pay for what Benjy’s parents contend are life-saving services for their son.
Their efforts were ultimately successful, if not exhausting