As technology continues to advance, whole-genome
research activities seem likely to intensify and expand, necessitating carefully considered
consensus guidelines for ethical research practice. Therefore, an interdisciplinary consensus
workshop was convenedto develop ethically rigorous and practical guidance for investigators and research
ethics boards.What follows are
recommendations on the four topics that were the focus of the workshop. These topics are consent, withdrawal from research, return of research results, and public data release. The paper starts with initial considerations, including general recommendations about governance and the characterization of the research activities related to the whole genome.
More abstracts about the Research Ethics Recommendations for Whole-Genome Research